• Our Mission

    Our Mission

    Our mission at PCD Smiles is to bring smiles to hospitalized primary ciliary dyskinesia, no mater their age; through the gift of a cheer package. Currently serving only The United States and Canada.
  • Request Cheer Package

    Request Cheer Package

    Know of a hospitalized primary ciliary dyskinesia patient? Please visit our “Request a Cheer Package” link and fill out our secured form to submit them for a cheer package today!
  • Donations

    Donations

    Our cheer package program runs on donations. To see how you can help PCD Smiles, visit our donations section today!
  • The PCD Artist Project is a collaborative effort by artist to raise awareness for PCD & support the PCD Smiles cheer package program. Visit our exhibits today!
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  • Nasal Washes, Yay or Nay?

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Dear Smile E.

I read somewhere that coffee should be avoided with respiratory disease. And then on one of the Turtle Talk Café Facebook group’s nutritional post that caffeine was okay and actually a bronchodilator. I’m confused, which is it? Should I give up coffee or not?

Signed,

Coffee Drinking PCDer

 

Dear Coffee Drinking PCDer,

My best advice is to discuss this with your medical team to ensure that you are doing what is right for your exact medical needs and health history. It is true that the caffeine has a variety of pharmacological effects. It’s a weak natural bronchodilator which is said to improve airways function for up to four hours after consumption, and caffeine is also said to reduce respiratory fatigue. It’s is also chemically related to theophylline, which is a drug used to treat asthma. Some people even claim it can increase your lung function, some say immediately and others say the effect happens over time. This claim of increased lung function has little scientific evidence to back it up.

With all that being said, One case-control study in 2018 found a higher risk of chronic obstructive pulmonary disease (COPD) with coffee consumption. However a majority of studies ultimately concluded that coffee consumption can help ease breathlessness, increase lung function, effect pulmonary function test results, and lower the morbidity in respiratory patients. As always it’s ultimately up to you and your medical team to chose the lifestyle that best fits your exact health needs.

 

Yours Truly,

Smile E. Turtle

 

Do you have a question for Smile E.? 

Please EMAIL your questions to; This email address is being protected from spambots. You need JavaScript enabled to view it.

And tune in next Sunday to read the latest Ask Smile E.

Join our Facebook group Turtle Talk Café today, click here.

We have several ways that you can donate to PCD Smiles;

- Visit Smile E. Turtle's Amazon Wishlist

- For more information on how you can donate, please visit our "Donation" page to check out our "Do & Don't policies.

- Or sponsor a PCD Smiles cheer package today!

- To shop for your “Official” turtle care ribbon gear today, visit PCD Style or Smile E. Cove

Thank you for your consideration!

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