• Our Mission

    Our Mission

    Our mission at PCD Smiles is to bring smiles to hospitalized primary ciliary dyskinesia, no mater their age; through the gift of a cheer package. Currently serving only The United States and Canada.
  • Request Cheer Package

    Request Cheer Package

    Know of a hospitalized primary ciliary dyskinesia patient? Please visit our “Request a Cheer Package” link and fill out our secured form to submit them for a cheer package today!
  • Donations

    Donations

    Our cheer package program runs on donations. To see how you can help PCD Smiles, visit our donations section today!
  • The PCD Artist Project is a collaborative effort by artist to raise awareness for PCD & support the PCD Smiles cheer package program. Visit our exhibits today!
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  • Nasal Washes, Yay or Nay?

    Nasal Washes, Yay or Nay?

    Are you Team Yay or Team Nay when it comes to nasal washes for you or your loved one with primary ciliary dyskinesia (PCD)? Nasal washes are an integral component to PCD care, or rather they could...
  • Disordered Sleeping and Sleep Disturbances in PCD

    Disordered Sleeping and Sleep Disturbances in PCD

    Disordered sleeping and sleep disturbances are more common in PCD than once thought. It’s not surprising given that you need to be able to breathe properly in order to sleep properly. Sleep related...
  • Can I live a Holistic Lifestyle with PCD?

    Can I live a Holistic Lifestyle with PCD?

    There are no studies into holistic lifestyle alongside a primary ciliary dyskinesia (PCD) diagnosis. There are however a few antidotal reports from the PCD patient population where patients have...
  • PCD Awareness Month a Necessary Evil?

    PCD Awareness Month a Necessary Evil?

    We are a little less than two weeks away from another PCD Awareness Month. I’m just not feeling it this year. It seems to get a little more difficult each year, and I am not sure why it gets more...

Dear Smile E.

I’m really learning a lot lately and had a question about airway clearance devices. I have two children with primary ciliary dyskinesia and two children without. I’ve been researching games to make airway clearance more fun for my toddlers and ran across your website. My question deals with having multiple children participating in the games at once, can the all use the same straw for this football game I found? They blow a cotton ball back and forth across the pitch to the goals. Should they all have their own straws? The game directions are not clear. Can my PCD kids share straws.

Signed,

PCD Football Mom

 

Dear PCD Football Mom,

Thank you for taking the time to submit your question in writing. As per our discussion through Facebook direct messaging, everyone playing should have their own straws to prevent cross contamination of bacteria. Cross contamination of bacteria in PCD is not well understood at this time. However given the seriousness of cross contamination in other mucociliary clearance disorders like cystic fibrosis for instance exercising caution is prudent. If the pandemic has shown us anything, it is that cross contamination is a huge deal when it comes to respiratory illnesses and infections. It is definitely important to never share airway clearance devices, up and to including airway clearance vests and the actual vest machine itself.

I’d also like to publicly thank you for helping PCD Smiles’s with all the cool airway clearance activities for our Fun-Physio with PCD Smiles segment.

Yours Truly,

Smile E. Turtle

Do you have a question for Smile E.? 

Please EMAIL your questions to; This email address is being protected from spambots. You need JavaScript enabled to view it.

And tune in next Sunday to read the latest Ask Smile E.

Join our Facebook group Turtle Talk Café today, click here.

We have several ways that you can donate to PCD Smiles;

- Visit Smile E. Turtle's Amazon Wishlist

- For more information on how you can donate, please visit our "Donation" page to check out our "Do & Don't policies.

- Or sponsor a PCD Smiles cheer package today!

- To shop for your “Official” turtle care ribbon gear today, visit PCD Style or Smile E. Cove

Thank you for your consideration!

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PCD Smiles’s 1st  Biennial Fundraiser Painting 4 Smiles

PCD Smiles’s 1st  Biennial Fundraiser Painting 4 Smiles

Can you help us reach our goal? PCD Smiles’s 1st Biennial fundraiser Painting 4 Smiles runs the...
Random Fact Friday 1

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“Regular clinical visits to monitor disease status are key. Aggressive treatment is recommended to...
Urgent Stuffies Needed for our Cheer Packages!

Urgent Stuffies Needed for our Cheer Packages!

We are in great need for all things stuffy for our littlest cheer package recipients. Our younger...