• Our Mission

    Our Mission

    Our mission at PCD Smiles is to bring smiles to hospitalized primary ciliary dyskinesia, no mater their age; through the gift of a cheer package. Currently serving only The United States and Canada.
  • Request Cheer Package

    Request Cheer Package

    Know of a hospitalized primary ciliary dyskinesia patient? Please visit our “Request a Cheer Package” link and fill out our secured form to submit them for a cheer package today!
  • Donations

    Donations

    Our cheer package program runs on donations. To see how you can help PCD Smiles, visit our donations section today!
  • The PCD Artist Project is a collaborative effort by artist to raise awareness for PCD & support the PCD Smiles cheer package program. Visit our exhibits today!
Time remaining for 2023 Limited Edition Merchandise...
Days
:
Hours
:
Minutes
:
Seconds
  • Nasal Washes, Yay or Nay?

    Nasal Washes, Yay or Nay?

    Are you Team Yay or Team Nay when it comes to nasal washes for you or your loved one with primary ciliary dyskinesia (PCD)? Nasal washes are an integral component to PCD care, or rather they could...
  • Disordered Sleeping and Sleep Disturbances in PCD

    Disordered Sleeping and Sleep Disturbances in PCD

    Disordered sleeping and sleep disturbances are more common in PCD than once thought. It’s not surprising given that you need to be able to breathe properly in order to sleep properly. Sleep related...
  • Can I live a Holistic Lifestyle with PCD?

    Can I live a Holistic Lifestyle with PCD?

    There are no studies into holistic lifestyle alongside a primary ciliary dyskinesia (PCD) diagnosis. There are however a few antidotal reports from the PCD patient population where patients have...
  • PCD Awareness Month a Necessary Evil?

    PCD Awareness Month a Necessary Evil?

    We are a little less than two weeks away from another PCD Awareness Month. I’m just not feeling it this year. It seems to get a little more difficult each year, and I am not sure why it gets more...

Turn treatment-time into play-time with leaf play. Doing outside chores like leaf cleanup can present opportunities to squeeze in some airway clearance for your PCD loved one. Airway clearance doesn’t always have to be scheduled or timed just right. Taking advantage of unusual opportunities to squeeze in a little extra coughing is very important in keeping your PCD loved one’s airways clear. Sometimes all it takes is a bit of coughing. Activities like chores that could also turn into fun can induce coughing.

 

See I was brought up that coughing was bad and something to be hidden. It should never be done in front of people. Coughing also signaled that I needed to stop what I was doing and sit down. Honestly that was virtually the wrong thing to do for a person with PCD. Even some of my doctors were in agreement that coughing needed stopped, stifled, and signaled I was over exerting myself. In PCD we retain our cough clearance, so in essence coughing is the right thing to do always. Coughing is good grooming in PCD care. We need to cough. If your PCDer is coughing don’t cringe, celebrate and encourage coughing. Coughing helps keeps our airways clear of debris and bacteria that can cause pulmonary infections. Better out than in, remember that old saying. Cough, cough, cough, and more coughing.

 

Chores that turn into playtime get done faster and encourages people to repeat the chore next time. And come on, who hasn’t played in the leafs while cleaning them up for winter? Play in the leaves and get coughing! If you’re struggling to get your child engaged with their airway clearance techniques try turning airway clearance into play, it could help lessen the burden of persuading your child to do their treatments. If you’re an adult, remember that the best airway clearance technique for you is the one that you will actually do. There are tons of airway clearance techniques and tons of outside the box ideas as well. Experiment today and put the fun back into your life. Remember airway hygiene is an important part of primary ciliary dyskinesia care.

 

 

Join our Facebook group Turtle Talk Café today, click here.

 

We have several ways that you can donate to PCD Smiles;

- Visit Smile E. Turtle's Amazon Wishlist; https://www.amazon.com/hz/wishlist/ls/KNO9BAJR74I4?ref_=wl_share

- For more information on how you can donate, please visit our "Donation" page to check out our "Do & Don't policies at; http://portaltest.pcdsmiles.com/support-pcdsmiles/donations2

- To sponsor a PCD Smiles Cheer-box today!

https://store.pcdstyle.com/21-donations

- To shop for your “Official” turtle care ribbon gear today!

www.pcdstyle.com

or

https://www.smileecove.com/stores/cove

 

Thank you for your consideration!

 #PCDsmiles #PCDstyle  #PCDsmilesCookbook #PrimaryCiliaryDyskinesia #SmileEcove #TurtleTalk #TurtleTalkCafe #PCD#FunPhysioWithPCD

#PCDawareness to help find a #cure4PCD!

  

  • Hits: 738
PCD Smiles’s 1st  Biennial Fundraiser Painting 4 Smiles

PCD Smiles’s 1st  Biennial Fundraiser Painting 4 Smiles

Can you help us reach our goal? PCD Smiles’s 1st Biennial fundraiser Painting 4 Smiles runs the...
Random Fact Friday 1

Random Fact Friday 1

“Regular clinical visits to monitor disease status are key. Aggressive treatment is recommended to...
Urgent Stuffies Needed for our Cheer Packages!

Urgent Stuffies Needed for our Cheer Packages!

We are in great need for all things stuffy for our littlest cheer package recipients. Our younger...