• Our Mission

    Our Mission

    Our mission at PCD Smiles is to bring smiles to hospitalized primary ciliary dyskinesia, no mater their age; through the gift of a cheer package. Currently serving only The United States and Canada.
  • Request Cheer Package

    Request Cheer Package

    Know of a hospitalized primary ciliary dyskinesia patient? Please visit our “Request a Cheer Package” link and fill out our secured form to submit them for a cheer package today!
  • Donations

    Donations

    Our cheer package program runs on donations. To see how you can help PCD Smiles, visit our donations section today!
  • The PCD Artist Project is a collaborative effort by artist to raise awareness for PCD & support the PCD Smiles cheer package program. Visit our exhibits today!

Random Fact Friday

*Studies of drugs like L-arginine which can directly improve, or at least increase (it's not clear that just moving faster necessarily improves function/clearance), ciliary function have not been particularly successful in PCD. This is because the genetic variants that cause PCD result in missing proteins that are required to form structural/functional cilia. In PCD, using these drugs is a bit like putting premium gasoline into a car with a broken or missing axle. You'd be able to rev the engine better, but you still won't be going anywhere until the structural problem with the car is fixed--this is why there is so much interest in gene-based therapies for PCD right now.” ~ United States PCD Foundation

 

The more you know…

 

Join our Facebook group Turtle Talk Café today, click here.

 

We have several ways that you can donate to PCD Smiles;

- Visit Smile E. Turtle's Amazon Wishlist; https://www.amazon.com/hz/wishlist/ls/KNO9BAJR74I4?ref_=wl_share

- For more information on how you can donate, please visit our "Donation" page to check out our "Do & Don't policies at; http://portaltest.pcdsmiles.com/support-pcdsmiles/donations2

- To sponsor a PCD Smiles Cheer-box today!

https://store.pcdstyle.com/21-donations

- To shop for your “Official” turtle care ribbon gear today!

www.pcdstyle.com

or

https://www.smileecove.com/stores/cove

 

Thank you for your consideration!

 #PCDsmiles #PCDstyle  #PCDsmilesCookbook #PrimaryCiliaryDyskinesia #SmileEcove #TurtleTalk #TurtleTalkCafe #PCD#RandomFactFriday

#PCDawareness to help find a #cure4PCD!

  

{fastsocialshare

  • Hits: 1794
Random Fact Friday 2024.138

Random Fact Friday 2024.138

Primary ciliary dyskinesia (PCD) is a congenital motile ciliopathy, associated with chronic...
Random Fact Friday 2024.131

Random Fact Friday 2024.131

Did you know that olfactory dysfunction is common in chronic rhinosinusitis (CRS); indeed, it is...
Random Fact Friday 2024.123

Random Fact Friday 2024.123

Did you know that this study found that patients...