• Our Mission

    Our Mission

    Our mission at PCD Smiles is to bring smiles to hospitalized primary ciliary dyskinesia, no mater their age; through the gift of a cheer package. Currently serving only The United States and Canada.
    Read more
  • Request Cheer Package

    Request Cheer Package

    Know of a hospitalized primary ciliary dyskinesia patient? Please visit our “Request a Cheer Package” link and fill out our secured form to submit them for a cheer package today!
    Read more
  • Donations

    Donations

    Our cheer package program runs on donations. To see how you can help PCD Smiles, visit our donations section today!
    Read more
  • The PCD Artist Project is a collaborative effort by artist to raise awareness for PCD & support the PCD Smiles cheer package program. Visit our exhibits today!
    Read More

Written by PCD Smiles on . Posted in Random Fact Friday.

“Regular clinical visits to monitor disease status are key. Aggressive treatment is recommended to improve mucus clearance. Antibiotic therapy is required and routine immunization is advised. Sinus disease can be treated with nasal steroids and nasal lavage. Polyps may require surgical treatment. Audiological assessment, hearing aids, and communication assistance should be offered where necessary. Patients with end-stage lung disease are candidates for lung transplantation.” ~ Orpha.net; Primary Ciliary Dyskinesia 

The more you know…

Join our Facebook group Turtle Talk Café today, click here.

We have several ways that you can donate to PCD Smiles;

- Visit Smile E. Turtle's Amazon Wishlist

- For more information on how you can donate, please visit our "Donation" page to check out our "Do & Don't policies.

- Or sponsor a PCD Smiles cheer package today!

- To shop for your “Official” turtle care ribbon gear today, visit PCD Style or Smile E. Cove

Thank you for your consideration!

  • Hits: 1237

Written by PCD Smiles on . Posted in Random Fact Friday.

Persistent nasal obstruction is very common at all ages, as children and adults refer a daily year-round nose congestion evident yet in the neonatal period or in the first years of life.

https://www.frontiersin.org/articles/10.3389/fped.2017.00135/full 

 

The more you know…

 

Join our Facebook group Turtle Talk Café today, click here.

 

We have several ways that you can donate to PCD Smiles;

- Visit Smile E. Turtle's Amazon Wishlist;  https://www.amazon.com/hz/wishlist/ls/KNO9BAJR74I4?ref_=wl_share

- For more information on how you can donate, please visit our "Donation" page to check out our "Do & Don't policies at; http://portaltest.pcdsmiles.com/support-pcdsmiles/donations2

- To sponsor a PCD Smiles Cheer-box today!

https://store.pcdstyle.com/21-donationsQ

- To shop for your “Official” turtle care ribbon gear today!

www.pcdstyle.com

or

https://www.smileecove.com/stores/cove

 

Thank you for your consideration!

 #PCDsmiles #PCDstyle  #PCDsmilesCookbook #PrimaryCiliaryDyskinesia #SmileEcove #TurtleTalk #TurtleTalkCafe #PCD#RandomFactFriday #PCDchallenge

#PCDawareness to help find a #cure4PCD!

  

  • Hits: 1658

Written by PCD Smiles on . Posted in Random Fact Friday.

By adulthood, nearly every person with PCD will have bronchiectasis. As bronchiectasis progresses, infections worsen and can sometimes lead to respiratory failure. Some people with PCD may need lung transplantation if their lungs fail. 

https://www.thoracic.org/patients/patient-resources/resources/pcd.pdf

 

The more you know…

 

Join our Facebook group Turtle Talk Café today, click here.

 

We have several ways that you can donate to PCD Smiles;

- Visit Smile E. Turtle's Amazon Wishlist; https://www.amazon.com/hz/wishlist/ls/KNO9BAJR74I4?ref_=wl_share

- For more information on how you can donate, please visit our "Donation" page to check out our "Do & Don't policies at; http://portaltest.pcdsmiles.com/support-pcdsmiles/donations2

- To sponsor a PCD Smiles Cheer-box today!

https://store.pcdstyle.com/21-donations

- To shop for your “Official” turtle care ribbon gear today!

www.pcdstyle.com

or

https://www.smileecove.com/stores/cove

 

Thank you for your consideration!

 #PCDsmiles #PCDstyle  #PCDsmilesCookbook #PrimaryCiliaryDyskinesia #SmileEcove #TurtleTalk #TurtleTalkCafe #PCD#RandomFactFriday

#PCDawareness to help find a #cure4PCD!

  

  • Hits: 1753

Written by PCD Smiles on . Posted in Random Fact Friday.

Most observational studies in PCD have been cross-sectional, and knowledge of prognosis is based on a handful of longitudinal studies with relatively few patients.

https://adc.bmj.com/content/99/9/850

 

The more you know…

 

Join our Facebook group Turtle Talk Café today, click here.

 

We have several ways that you can donate to PCD Smiles;

- Visit Smile E. Turtle's Amazon Wishlist; https://www.amazon.com/hz/wishlist/ls/KNO9BAJR74I4?ref_=wl_share

- For more information on how you can donate, please visit our "Donation" page to check out our "Do & Don't policies at; http://portaltest.pcdsmiles.com/support-pcdsmiles/donations2

- To sponsor a PCD Smiles Cheer-box today!

https://store.pcdstyle.com/21-donations

- To shop for your “Official” turtle care ribbon gear today!

www.pcdstyle.com

or

https://www.smileecove.com/stores/cove

 

Thank you for your consideration!

 #PCDsmiles #PCDstyle  #PCDsmilesCookbook #PrimaryCiliaryDyskinesia #SmileEcove #TurtleTalk #TurtleTalkCafe #PCD#RandomFactFriday #PCDchallenge

#PCDawareness to help find a #cure4PCD!

  

  • Hits: 1419

Written by PCD Smiles on . Posted in Random Fact Friday.

People with PCD who live together, can help decrease the spread of germs between themselves by doing airway clearance at different times and in different rooms.

 

The more you know…

 

Join our Facebook group Turtle Talk Café today, click here.

 

We have several ways that you can donate to PCD Smiles;

- Visit Smile E. Turtle's Amazon Wishlist; https://www.amazon.com/hz/wishlist/ls/KNO9BAJR74I4?ref_=wl_share

- For more information on how you can donate, please visit our "Donation" page to check out our "Do & Don't policies at; http://portaltest.pcdsmiles.com/support-pcdsmiles/donations2

- To sponsor a PCD Smiles Cheer-box today!

https://store.pcdstyle.com/21-donations

- To shop for your “Official” turtle care ribbon gear today!

www.pcdstyle.com

or

https://www.smileecove.com/stores/cove

 

Thank you for your consideration!

 #PCDsmiles #PCDstyle  #PCDsmilesCookbook #PrimaryCiliaryDyskinesia #SmileEcove #TurtleTalk #TurtleTalkCafe #PCD#RandomFactFriday #PCDchallenge

#PCDawareness to help find a #cure4PCD!

  

  • Hits: 1656

More Articles …

Page 6 of 20

Random Fact Friday 2024.138

Random Fact Friday 2024.138

Written by PCD Smiles on May 17, 2024. Posted in Random Fact Friday

Primary ciliary dyskinesia (PCD) is a congenital motile ciliopathy, associated with chronic...
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Random Fact Friday 2024.131

Random Fact Friday 2024.131

Written by PCD Smiles on April 25, 2024. Posted in Random Fact Friday

Did you know that olfactory dysfunction is common in chronic rhinosinusitis (CRS); indeed, it is...
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Random Fact Friday 2024.123

Random Fact Friday 2024.123

Written by PCD Smiles on April 23, 2024. Posted in Random Fact Friday

Did you know that this study found that patients...
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Are PCD Medications Safe to Drive On?

Are PCD Medications Safe to Drive On?

Written by PCD Smiles on January 20, 2022. Posted in Topic Thursday

As with any medication caution should be taken until you know how that medication will affect you....
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Yup! Still Sick

Yup! Still Sick

Written by PCD Smiles on May 26, 2022. Posted in Topic Thursday

That’s is PCD for you. After five months of trying to fight this pseudomonas pneumonia at home,...
Read More
Struggling with Treatment Compliance

Struggling with Treatment Compliance

Written by PCD Smiles on April 07, 2022. Posted in Topic Thursday

A huge issue with any chronic illness is treatment compliance. Did you know that in order to...
Read More