I’m often get asked if this PCD cough will go away, or what’s the best things to use to get my PCDer’s cough to quite and or go away. I’m afraid that the answer isn’t simple by any regards. In PCD we lack a working mucociliary escalator. The cilia part of that escalator is broken, so mucus doesn’t naturally clear on its own. We with PCD have to manually move that mucus out of our airways. And we primarily do that by utilizing cough clearance. So we need to cough to keep our airways clear, so the non moving mucus doesn’t trap gas behind that stuck mucus. Air trapping is a big thing in PCD, and it often leaves the PCD patient with breathlessness. Breathlessness that can sometimes be debilitating. Cough suppression in PCD isn’t widely recommended by the PCD experts due to our non working mucociliary escalator. If a provider is asking you to stifle or suppress your cough clearance, be sure that you get a good explanation and understand that explanation before agreeing to hinder cough clearance in your PCD loved one. We with PCD need to cough it up and out, every single day, every single time.
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