• Our Mission

    Our Mission

    Our mission at PCD Smiles is to bring smiles to hospitalized primary ciliary dyskinesia, no mater their age; through the gift of a cheer package. Currently serving only The United States and Canada.
  • Request Cheer Package

    Request Cheer Package

    Know of a hospitalized primary ciliary dyskinesia patient? Please visit our “Request a Cheer Package” link and fill out our secured form to submit them for a cheer package today!
  • Donations

    Donations

    Our cheer package program runs on donations. To see how you can help PCD Smiles, visit our donations section today!
  • The PCD Artist Project is a collaborative effort by artist to raise awareness for PCD & support the PCD Smiles cheer package program. Visit our exhibits today!
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  • Nasal Washes, Yay or Nay?

    Nasal Washes, Yay or Nay?

    Are you Team Yay or Team Nay when it comes to nasal washes for you or your loved one with primary ciliary dyskinesia (PCD)? Nasal washes are an integral component to PCD care, or rather they could...
  • Disordered Sleeping and Sleep Disturbances in PCD

    Disordered Sleeping and Sleep Disturbances in PCD

    Disordered sleeping and sleep disturbances are more common in PCD than once thought. It’s not surprising given that you need to be able to breathe properly in order to sleep properly. Sleep related...
  • Can I live a Holistic Lifestyle with PCD?

    Can I live a Holistic Lifestyle with PCD?

    There are no studies into holistic lifestyle alongside a primary ciliary dyskinesia (PCD) diagnosis. There are however a few antidotal reports from the PCD patient population where patients have...
  • PCD Awareness Month a Necessary Evil?

    PCD Awareness Month a Necessary Evil?

    We are a little less than two weeks away from another PCD Awareness Month. I’m just not feeling it this year. It seems to get a little more difficult each year, and I am not sure why it gets more...

Dear Ask Smile E.,

I’ve currently been taking azithromycin Monday, Wednesday, and Friday but I’m still getting infections, why? Should I stop taking them since they aren’t working? I don’t want to end up with antibiotic resistance.

Signed,

Sick of Antibiotics

 

Dear Sick of Antibiotics,

Low dose prophylactic antibiotics are truly not meant to fight infections, nor are they meant to stop infections completely. First off, being low dose, the antibiotics are not powerful enough to be therapeutic to infections. Instead low dose prophylactic antibiotics, given to patients with respiratory diseases, are meant to target airway inflammation and reduce it. Airway inflammation in PCD is another way mucus can become stuck in the respiratory system. Stuck mucus is a breeding ground for additional airway infections. The thought behind low dose prophylactic antibiotics is to decrease airway inflammation. Which will help decrease the overall number of lung infections for a patient, delay the onset (start) of bronchiectasis, and delay or lessen the risks of developing infections like pseudomonas and even nontuberculosis mycobacteria.

As far as stopping your medication; I encourage you to speak to your doctor first before doing anything, including stopping any medication, as I am not a licensed physician. With that being said, your doctor may feel this treatment is actually effective for your particular situation. But only you and your doctor can determine that based on your unique goals of treatment. Also stopping and restarting antibiotics over short periods of time can actually lead to antibiotic resistance. As I said; this is a very important topic for you and your care team to discuss, so I urge you to reach out to your team for guidance. Remember you are an important part of your care team, so don’t be afraid to speak up when you have questions, concerns, or disagree with something.

Yours Truly,

Smile E. Turtle

 

Do you have a question for Smile E.?

Please EMAIL your questions to; This email address is being protected from spambots. You need JavaScript enabled to view it.

And tune in next Sunday to read the latest Ask Smile E.

Join our Facebook group Turtle Talk Café today, click here.

We have several ways that you can donate to PCD Smiles;

- Visit Smile E. Turtle's Amazon Wishlist

- For more information on how you can donate, please visit our "Donation" page to check out our "Do & Don't policies.

- Or sponsor a PCD Smiles cheer package today!

- To shop for your “Official” turtle care ribbon gear today, visit PCD Style or Smile E. Cove

Thank you for your consideration!

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PCD Smiles’s 1st  Biennial Fundraiser Painting 4 Smiles

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