• Our Mission

    Our Mission

    Our mission at PCD Smiles is to bring smiles to hospitalized primary ciliary dyskinesia, no mater their age; through the gift of a cheer package. Currently serving only The United States and Canada.
  • Request Cheer Package

    Request Cheer Package

    Know of a hospitalized primary ciliary dyskinesia patient? Please visit our “Request a Cheer Package” link and fill out our secured form to submit them for a cheer package today!
  • Donations

    Donations

    Our cheer package program runs on donations. To see how you can help PCD Smiles, visit our donations section today!
  • The PCD Artist Project is a collaborative effort by artist to raise awareness for PCD & support the PCD Smiles cheer package program. Visit our exhibits today!
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  • Nasal Washes, Yay or Nay?

    Nasal Washes, Yay or Nay?

    Are you Team Yay or Team Nay when it comes to nasal washes for you or your loved one with primary ciliary dyskinesia (PCD)? Nasal washes are an integral component to PCD care, or rather they could...
  • Disordered Sleeping and Sleep Disturbances in PCD

    Disordered Sleeping and Sleep Disturbances in PCD

    Disordered sleeping and sleep disturbances are more common in PCD than once thought. It’s not surprising given that you need to be able to breathe properly in order to sleep properly. Sleep related...
  • Can I live a Holistic Lifestyle with PCD?

    Can I live a Holistic Lifestyle with PCD?

    There are no studies into holistic lifestyle alongside a primary ciliary dyskinesia (PCD) diagnosis. There are however a few antidotal reports from the PCD patient population where patients have...
  • PCD Awareness Month a Necessary Evil?

    PCD Awareness Month a Necessary Evil?

    We are a little less than two weeks away from another PCD Awareness Month. I’m just not feeling it this year. It seems to get a little more difficult each year, and I am not sure why it gets more...

Dear Ask Smile.,

Does living near the ocean help people with PCD? If not where would?

Signed,

Willing to Move for my PCDer

 

Dear Willing to Move for my PCDer,

Honestly there isn’t enough longterm data for PCD regarding climate, there isn’t even enough data for CF either. Some patients with PCD and some patients with CF report that coastal areas are great for them, due to salt content in the air. But researchers say the data doesn’t suggest if it’s a temporary thing that eventually wears off; like you tend to see in allergies when someone moves to a new area. The data also doesn’t tell researchers if in the long run certain climates help certain pulmonary diseases.

As far as where the best place to live when you have PCD, that is really a hard question to pin down. Some PCD patients report living near the ocean is best for them. Some patients report that a dry humid climates is best for them. Some patients report that a cold humid place works of them. And even some patients report they do better in hot and humid climates. This issue seems to be individually based per patient with no real scientific understanding to date.

Yours Truly,

Smile E. Turtle

 

Do you have a question for Smile E.?

Please EMAIL your questions to; This email address is being protected from spambots. You need JavaScript enabled to view it.

 And tune in next Sunday to read the latest Ask Smile E.

Join our Facebook group Turtle Talk Café today, click here.

We have several ways that you can donate to PCD Smiles;

- Visit Smile E. Turtle's Amazon Wishlist

- For more information on how you can donate, please visit our "Donation" page to check out our "Do & Don't policies.

- Or sponsor a PCD Smiles cheer package today!

- To shop for your “Official” turtle care ribbon gear today, visit PCD Style or Smile E. Cove

Thank you for your consideration!

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PCD Smiles’s 1st  Biennial Fundraiser Painting 4 Smiles

PCD Smiles’s 1st  Biennial Fundraiser Painting 4 Smiles

Can you help us reach our goal? PCD Smiles’s 1st Biennial fundraiser Painting 4 Smiles runs the...
Random Fact Friday 1

Random Fact Friday 1

“Regular clinical visits to monitor disease status are key. Aggressive treatment is recommended to...
Urgent Stuffies Needed for our Cheer Packages!

Urgent Stuffies Needed for our Cheer Packages!

We are in great need for all things stuffy for our littlest cheer package recipients. Our younger...
Things Not to Say to a Person with PCD or their Caregivers

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For Rare Disease Day 2018 we asked the PCD (Primary Ciliary Dyskinesia) community, “What are your...