• Our Mission

    Our Mission

    Our mission at PCD Smiles is to bring smiles to hospitalized primary ciliary dyskinesia, no mater their age; through the gift of a cheer package. Currently serving only The United States and Canada.
  • Request Cheer Package

    Request Cheer Package

    Know of a hospitalized primary ciliary dyskinesia patient? Please visit our “Request a Cheer Package” link and fill out our secured form to submit them for a cheer package today!
  • Donations

    Donations

    Our cheer package program runs on donations. To see how you can help PCD Smiles, visit our donations section today!
  • The PCD Artist Project is a collaborative effort by artist to raise awareness for PCD & support the PCD Smiles cheer package program. Visit our exhibits today!
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  • Nasal Washes, Yay or Nay?

    Nasal Washes, Yay or Nay?

    Are you Team Yay or Team Nay when it comes to nasal washes for you or your loved one with primary ciliary dyskinesia (PCD)? Nasal washes are an integral component to PCD care, or rather they could...
  • Disordered Sleeping and Sleep Disturbances in PCD

    Disordered Sleeping and Sleep Disturbances in PCD

    Disordered sleeping and sleep disturbances are more common in PCD than once thought. It’s not surprising given that you need to be able to breathe properly in order to sleep properly. Sleep related...
  • Can I live a Holistic Lifestyle with PCD?

    Can I live a Holistic Lifestyle with PCD?

    There are no studies into holistic lifestyle alongside a primary ciliary dyskinesia (PCD) diagnosis. There are however a few antidotal reports from the PCD patient population where patients have...
  • PCD Awareness Month a Necessary Evil?

    PCD Awareness Month a Necessary Evil?

    We are a little less than two weeks away from another PCD Awareness Month. I’m just not feeling it this year. It seems to get a little more difficult each year, and I am not sure why it gets more...

Dear Smile E.

Is there a trick to getting medication refills for vaccination? I hate to have to mess with it while traveling, or do I have to? Your thoughts!

Signed,

PCD Vacationer

 

Dear PCD Vacationer,

You can absolutely get your medications refilled prior to a vacation, so that you don’t have to mess with it during your vacation. There are just a few things to keep in mind. First you are only permitted to get one vacation early refill in a rolling twelve month period. So basically if you request on you can’t request another for another twelve calendar months. Knowing this be sure that you request refills for every single one of your nonscheduled medications at the same exact second with your pharmacist. Scheduled narcotics and or other regulated medications can not be filled early even with a vacation waiver, those will have to be filled during your vacation and are almost impossible to even do that. Unfortunately scheduled or regulated medications are virtually impossible to get outside your regular pharmacy and days early. To get a vacation refill contact your pharmacist and ask for a vacation waiver/ early refill due to vacation, every pharmacy has a different name for it. Your pharmacist will contact your insurance provider and submit for a vacation waiver approval to get your medications approved early for reimbursement. It’s then up to your insurance company to decide if you qualify for early coverage refills, you should if at least 365 days have passed since your last vacation waiver. Also, and I can’t stress this enough, when you ask your pharmacist for a vacation waiver be sure to include every prescription that you need early at that time. Once the waver is submitted for by the pharmacist you can not modify the order. So be sure that you include every medication that is eligible for refill. Remember narcotics and other scheduled/ regulated drugs like Ativan can not be refilled early even if your doctor agrees to it, per DEA enforcement rules. I hope that you have amazing time on your vacation!

Yours Truly,

Smile E. Turtle

 

Do you have a question for Smile E.? 

Please EMAIL your questions to; This email address is being protected from spambots. You need JavaScript enabled to view it.

And tune in next Sunday to read the latest Ask Smile E.

Join our Facebook group Turtle Talk Café today, click here.

We have several ways that you can donate to PCD Smiles;

- Visit Smile E. Turtle's Amazon Wishlist

- For more information on how you can donate, please visit our "Donation" page to check out our "Do & Don't policies.

- Or sponsor a PCD Smiles cheer package today!

- To shop for your “Official” turtle care ribbon gear today, visit PCD Style or Smile E. Cove

Thank you for your consideration!

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PCD Smiles’s 1st  Biennial Fundraiser Painting 4 Smiles

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