• Our Mission

    Our Mission

    Our mission at PCD Smiles is to bring smiles to hospitalized primary ciliary dyskinesia, no mater their age; through the gift of a cheer package. Currently serving only The United States and Canada.
  • Request Cheer Package

    Request Cheer Package

    Know of a hospitalized primary ciliary dyskinesia patient? Please visit our “Request a Cheer Package” link and fill out our secured form to submit them for a cheer package today!
  • Donations

    Donations

    Our cheer package program runs on donations. To see how you can help PCD Smiles, visit our donations section today!
  • The PCD Artist Project is a collaborative effort by artist to raise awareness for PCD & support the PCD Smiles cheer package program. Visit our exhibits today!
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  • Nasal Washes, Yay or Nay?

    Nasal Washes, Yay or Nay?

    Are you Team Yay or Team Nay when it comes to nasal washes for you or your loved one with primary ciliary dyskinesia (PCD)? Nasal washes are an integral component to PCD care, or rather they could...
  • Disordered Sleeping and Sleep Disturbances in PCD

    Disordered Sleeping and Sleep Disturbances in PCD

    Disordered sleeping and sleep disturbances are more common in PCD than once thought. It’s not surprising given that you need to be able to breathe properly in order to sleep properly. Sleep related...
  • Can I live a Holistic Lifestyle with PCD?

    Can I live a Holistic Lifestyle with PCD?

    There are no studies into holistic lifestyle alongside a primary ciliary dyskinesia (PCD) diagnosis. There are however a few antidotal reports from the PCD patient population where patients have...
  • PCD Awareness Month a Necessary Evil?

    PCD Awareness Month a Necessary Evil?

    We are a little less than two weeks away from another PCD Awareness Month. I’m just not feeling it this year. It seems to get a little more difficult each year, and I am not sure why it gets more...

Dear Smile E.

Are men with primary ciliary dyskinesia sterile?

Signed,

Wanting to be a Father

 

Dear Wanting to be a Father,

It was once thought that all males with PCD were sterile. With advances in research and the scientific understanding of ciliary this has thankfully been proven to be false. Hundreds of medical professionals still counsel male PCD patients and there families that their will be sterility due to PCD. Unfortunately theses professionals may not be up to date on their latest journals and research. Which isn’t surprising, because the medical field is vast and not everyone specializes in primary ciliary dyskinesia. They instead rely on old data. Most medical books also propagate this myth.

The flagellum of the sperm is basically put together with the same protein building blocks as motile cilia. This means the sperm tail doesn’t move adequately or at all which them doesn’t allow the sperm to do it’s job of swimming. Advances in fertility treatments have enabled doctors to use cytoplasmic injection to insert the sperm into the egg and then put it back into the female’s uterus via IVF. This has enabled makes with PCD to have their own biological children.

Also it important to note that there are males who have spontaneously fathered biological children without the need for any medical intervention. This is something I urge you to discuss with your medical team, when you (the male patient) are ready to start family planning. You as the patient should never be made to explore this aspect of PCD until you are ready. However on that note, PCD itself should not be used as birth control method because spontaneous pregnancies where one partner has PCD is very real. If you want to avoid accidental pregnancy, contraceptives are just as crucial for a person with PCD as they are for a person without PCD.

Yours Truly,

Smile E. Turtle

 

Do you have a question for Smile E.? 

Please EMAIL your questions to; This email address is being protected from spambots. You need JavaScript enabled to view it.

And tune in next Sunday to read the latest Ask Smile E.

Join our Facebook group Turtle Talk Café today, click here.

We have several ways that you can donate to PCD Smiles;

- Visit Smile E. Turtle's Amazon Wishlist

- For more information on how you can donate, please visit our "Donation" page to check out our "Do & Don't policies.

- Or sponsor a PCD Smiles cheer package today!

- To shop for your “Official” turtle care ribbon gear today, visit PCD Style or Smile E. Cove

Thank you for your consideration!

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PCD Smiles’s 1st  Biennial Fundraiser Painting 4 Smiles

PCD Smiles’s 1st  Biennial Fundraiser Painting 4 Smiles

Can you help us reach our goal? PCD Smiles’s 1st Biennial fundraiser Painting 4 Smiles runs the...
Random Fact Friday 1

Random Fact Friday 1

“Regular clinical visits to monitor disease status are key. Aggressive treatment is recommended to...
Urgent Stuffies Needed for our Cheer Packages!

Urgent Stuffies Needed for our Cheer Packages!

We are in great need for all things stuffy for our littlest cheer package recipients. Our younger...