• Our Mission

    Our Mission

    Our mission at PCD Smiles is to bring smiles to hospitalized primary ciliary dyskinesia, no mater their age; through the gift of a cheer package. Currently serving only The United States and Canada.
  • Request Cheer Package

    Request Cheer Package

    Know of a hospitalized primary ciliary dyskinesia patient? Please visit our “Request a Cheer Package” link and fill out our secured form to submit them for a cheer package today!
  • Donations

    Donations

    Our cheer package program runs on donations. To see how you can help PCD Smiles, visit our donations section today!
  • The PCD Artist Project is a collaborative effort by artist to raise awareness for PCD & support the PCD Smiles cheer package program. Visit our exhibits today!
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  • Nasal Washes, Yay or Nay?

    Nasal Washes, Yay or Nay?

    Are you Team Yay or Team Nay when it comes to nasal washes for you or your loved one with primary ciliary dyskinesia (PCD)? Nasal washes are an integral component to PCD care, or rather they could...
  • Disordered Sleeping and Sleep Disturbances in PCD

    Disordered Sleeping and Sleep Disturbances in PCD

    Disordered sleeping and sleep disturbances are more common in PCD than once thought. It’s not surprising given that you need to be able to breathe properly in order to sleep properly. Sleep related...
  • Can I live a Holistic Lifestyle with PCD?

    Can I live a Holistic Lifestyle with PCD?

    There are no studies into holistic lifestyle alongside a primary ciliary dyskinesia (PCD) diagnosis. There are however a few antidotal reports from the PCD patient population where patients have...
  • PCD Awareness Month a Necessary Evil?

    PCD Awareness Month a Necessary Evil?

    We are a little less than two weeks away from another PCD Awareness Month. I’m just not feeling it this year. It seems to get a little more difficult each year, and I am not sure why it gets more...

Dear Smile E.

I’m having a conflict with my current homecare nurse, what do I do?

Signed,

Unhappy Patient

 

Dear Unhappy Patient,

If you are having problems with your homecare nurse and you wish not to discuss the issue with said nurse, then I suggest that you call your nursing agency and ask for a nursing supervisor. You are perfectly in your right to ask that a particular nurse not to be involved in your case and to not be sent to your home without giving the agency a reason. However I do suggest that you share your concerns with the nursing supervisor so that supervisor can better match you with a nurse to meet your care expectations going forward. Though be prepared for the supervisor to ask you to give the nurse another chance. You do not have to do so, but be prepared for the agency to insist you do. You as a patient never have to submit to allowing a provider into your home for any reason.

Now this being said, might I suggest that if you haven’t talked to the nurse and expressed your concern that you might do so if you feel comfortable. You could also have your family member speak on your behalf. I get it, and I too have a list of nurses that my homecare is never to send back. And I’ve gone straight to the supervisor and bypassed talking to the nurse that I didn’t feel safe with. Remember it’s your care, your life, and your home. You should feel safe with your home providers. (((Great Big Hugs))) and try not to worry about offending anyone over your safety and comfort with your care.

Yours Truly,

Smile E. Turtle

 

Do you have a question for Smile E.? 

Please EMAIL your questions to; This email address is being protected from spambots. You need JavaScript enabled to view it.

And tune in next Sunday to read the latest Ask Smile E.

Join our Facebook group Turtle Talk Café today, click here.

We have several ways that you can donate to PCD Smiles;

- Visit Smile E. Turtle's Amazon Wishlist

- For more information on how you can donate, please visit our "Donation" page to check out our "Do & Don't policies.

- Or sponsor a PCD Smiles cheer package today!

- To shop for your “Official” turtle care ribbon gear today, visit PCD Style or Smile E. Cove

Thank you for your consideration!

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