• Our Mission

    Our Mission

    Our mission at PCD Smiles is to bring smiles to hospitalized primary ciliary dyskinesia, no mater their age; through the gift of a cheer package. Currently serving only The United States and Canada.
  • Request Cheer Package

    Request Cheer Package

    Know of a hospitalized primary ciliary dyskinesia patient? Please visit our “Request a Cheer Package” link and fill out our secured form to submit them for a cheer package today!
  • Donations

    Donations

    Our cheer package program runs on donations. To see how you can help PCD Smiles, visit our donations section today!
  • The PCD Artist Project is a collaborative effort by artist to raise awareness for PCD & support the PCD Smiles cheer package program. Visit our exhibits today!

Turn treatment-time into play-time with the hula hoop. Hula hoops offer a great way to get in some airway clearance disguised as fun. The uncoordinated breaths that naturally happen combined with the shaking movement mobilizes secretions and gets your PCD loved one coughing. Don’t stop just because they are coughing. Remember you want the coughs to help clear the naturally occurring mucus that our bodies produce daily. Without working cilia the PCD patient’s body can’t clear the approximate one point five quarts of mucus that their body makes every single day. Instead the person with PCD must manually clear these secretions every single day of their lives to ward off disease progression and permanent damage to their airways. Airway clearance every single day, at least twice a day when healthy or more when sick, gets extremely boring and frustrating. Shake things up and try some airway clearance techniques that are outside the box to keep things fresh and interesting.

 

If you’re struggling to get your child engaged with their airway clearance techniques try turning airway clearance into play, it could help lessen the burden of persuading your child to do their treatments. If you’re an adult, remember that the best airway clearance technique for you is the one that you will actually do. There are tons of airway clearance techniques and tons of outside the box ideas as well. Experiment today and put the fun back into your life. Remember airway hygiene is an important part of primary ciliary dyskinesia care.

Join our Facebook group Turtle Talk Café today.

We have several ways that you can donate to PCD Smiles;

- Visit Smile E. Turtle's Amazon Wishlist

- For more information on how you can donate, please visit our "Donation" page to check out our "Do & Don't policies.

- Or sponsor a PCD Smiles cheer package today!

- To shop for your “Official” turtle care ribbon gear today, visit PCD Style or Smile E. Cove

Thank you for your consideration!

***Please speak to your respiratory therapist or your PCD medical team before commencing any new treatment. DO NOT start using a device, or technique, on this website if you have not discussed this with your PCD team first.***

 

  • Hits: 1752
Random Fact Friday 2024.138

Random Fact Friday 2024.138

Primary ciliary dyskinesia (PCD) is a congenital motile ciliopathy, associated with chronic...
Random Fact Friday 2024.131

Random Fact Friday 2024.131

Did you know that olfactory dysfunction is common in chronic rhinosinusitis (CRS); indeed, it is...
Random Fact Friday 2024.123

Random Fact Friday 2024.123

Did you know that this study found that patients...