• Our Mission

    Our Mission

    Our mission at PCD Smiles is to bring smiles to hospitalized primary ciliary dyskinesia, no mater their age; through the gift of a cheer package. Currently serving only The United States and Canada.
  • Request Cheer Package

    Request Cheer Package

    Know of a hospitalized primary ciliary dyskinesia patient? Please visit our “Request a Cheer Package” link and fill out our secured form to submit them for a cheer package today!
  • Donations

    Donations

    Our cheer package program runs on donations. To see how you can help PCD Smiles, visit our donations section today!
  • The PCD Artist Project is a collaborative effort by artist to raise awareness for PCD & support the PCD Smiles cheer package program. Visit our exhibits today!
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  • Nasal Washes, Yay or Nay?

    Nasal Washes, Yay or Nay?

    Are you Team Yay or Team Nay when it comes to nasal washes for you or your loved one with primary ciliary dyskinesia (PCD)? Nasal washes are an integral component to PCD care, or rather they could...
  • Disordered Sleeping and Sleep Disturbances in PCD

    Disordered Sleeping and Sleep Disturbances in PCD

    Disordered sleeping and sleep disturbances are more common in PCD than once thought. It’s not surprising given that you need to be able to breathe properly in order to sleep properly. Sleep related...
  • Can I live a Holistic Lifestyle with PCD?

    Can I live a Holistic Lifestyle with PCD?

    There are no studies into holistic lifestyle alongside a primary ciliary dyskinesia (PCD) diagnosis. There are however a few antidotal reports from the PCD patient population where patients have...
  • PCD Awareness Month a Necessary Evil?

    PCD Awareness Month a Necessary Evil?

    We are a little less than two weeks away from another PCD Awareness Month. I’m just not feeling it this year. It seems to get a little more difficult each year, and I am not sure why it gets more...

Today’s featured artist is Kaylee LaMonte with her ink submission titled “Gandalf vs. Balrog”.

 

“Primary ciliary dyskinesia (PCD) is a genetically heterogeneous, rare lung disease causing chronic oto-sino-pulmonary disease and irreversible lung damage that may progress to respiratory failure. Recently, significant progress has been made in PCD diagnosis, yet few physicians outside of highly experienced PCD centers are skilled in recognizing the characteristic clinical phenotype and interpreting diagnostic tests. Patients often receive false-positive or false-negative PCD diagnoses, as physicians are unaware of the pitfalls commonly encountered with ciliary electron microscopy, PCD molecular genetic panels, ciliary motility studies, and nasal nitric oxide testing. Furthermore, PCD is often missed when respiratory symptoms are present in patients with other complex diseases involving cilia, such as heterotaxy and various genetic syndromes.”  ~ Diagnosis, monitoring, and treatment of primary ciliary dyskinesia: PCD foundation consensus recommendations based on state of the art review - Adam J. Shapiro MD, Maimoona A. Zariwala PhD, Thomas Ferkol MD, Stephanie D. Davis MD, Scott D. Sagel MD, PhD, Sharon D. Dell MD, Margaret Rosenfeld MD, Kenneth N. Olivier MD, Carlos Milla MD, Sam J. Daniel MD, Adam J. Kimple MD, Michele Manion, Michael R. Knowles MD, Margaret W. Leigh MD, for the Genetic Disorders of Mucociliary Clearance Consortium

 

The PCD Artist Project is a collaborative effort by artist to raise awareness for PCD or primary ciliary dyskinesia and support the PCD Smiles program. Each artist who submitted art work to the project either has PCD or has a PCD friend or family member.

 

The PCD Artist Project’s 2022 exhibition merchandise ranges from apparel, giftware, home furnishings, and printed products such as posters, prints, wall art, and other items, all created from our exhibition; which can be viewed on PCD Smiles’s website. It is our hope that you support the PCD Smiles program by purchasing exhibition merchandise today.

 

🧡 All proceeds from the PCD Artist Project go to support the PCD Smiles Cheer Package program! 🧡

 

Visit our shop today for your exhibition merchandise and more!

 

https://www.smileecove.com/stores/cove

 

Join our Facebook group Turtle Talk Café today, click here.

We have several ways that you can donate to PCD Smiles;

- Visit Smile E. Turtle's Amazon Wishlist;  https://www.amazon.com/hz/wishlist/ls/KNO9BAJR74I4?ref_=wl_share

- For more information on how you can donate, please visit our "Donation" page to check out our "Do & Don't policies at; http://portaltest.pcdsmiles.com/support-pcdsmiles/donations2

- To sponsor a PCD Smiles Cheer-box today!

https://store.pcdstyle.com/21-donations

- To shop for your “Official” turtle care ribbon gear today!

www.pcdstyle.com

or

https://www.smileecove.com/stores/cove

Thank you for your consideration! 

#PCDsmiles  #PCDstyle  #PCDsmilesCookbook  #PrimaryCiliaryDyskinesia  #SmileEcove  #TurtleTalk  #TurtleTalkCafe  #PCD#PCDchallenge

#PCDawareness to help find a #cure4PCD!  

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PCD Smiles’s 1st  Biennial Fundraiser Painting 4 Smiles

PCD Smiles’s 1st  Biennial Fundraiser Painting 4 Smiles

Can you help us reach our goal? PCD Smiles’s 1st Biennial fundraiser Painting 4 Smiles runs the...
Random Fact Friday 1

Random Fact Friday 1

“Regular clinical visits to monitor disease status are key. Aggressive treatment is recommended to...
Urgent Stuffies Needed for our Cheer Packages!

Urgent Stuffies Needed for our Cheer Packages!

We are in great need for all things stuffy for our littlest cheer package recipients. Our younger...
Things Not to Say to a Person with PCD or their Caregivers

Things Not to Say to a Person with PCD or their Caregivers

For Rare Disease Day 2018 we asked the PCD (Primary Ciliary Dyskinesia) community, “What are your...